It is perhaps also worth hanging on to the word .spectrum. in ASD. The world is especially puzzling, and at times threatening, for Christopher, and he physically squeezes into the airing cupboard for security. But an awful lot of people without an ASD label find the world fairly unintelligible and outside their control, and seek their own personal safety zone – perhaps even the splendid Siobhan, who does so much to help Christopher cope with his world and her colleagues. more details: Melbourne Property Valuers
Isn’t it bizarre that we focus so much interest on health services in the USA – the most expensive and inequitable health services in the world? Key to the project’s success was that all who delivered the scheme were involved in its planning. I notice in responses to the latest consultation on human genetics the familiar confusion between .disability. and .suffering.. I suspect that this is partly the .oh you poor thing. approach to disabled people; partly seeing not being able to do what you might want to do as a form of suffering; and partly a rather deliberate linkage to attract those who are instinctively against suffering to sign up to eliminating disability. My closest and most severely disabled friends do suffer from time to time, when they have bad teeth, or trapped wind, or break something; but I don’t see them as suffering from being disabled. From the range of Foundation work dealing with race and ethnicity comes a series of findings, including: Even people with good intentions can mess things up by failing in dealing with individuals to sort out and cater for ethnicity, culture and religion – which don’t always fit together neatly and obviously. Disabled people (as well as women) can be discriminated against by and within their own community and faith groups. (Potential for some nice clashes of rights here.)
A little knowledge can be a dangerous thing, because it leaves too much room for misplaced assumptions about individuals because of their apparent group identity. Some good sensible stuff here. However, I do wonder how much time the Matron has to talk to individual patients. I also wonder about patients finding it easier to talk to cleaners than to nurses, given the language barriers that sometimes exist with the former. Thirdly, being .fully part of the ward team. sits a little uneasily with contract cleaning, however hard everyone tries.
The story of a very brave 11 year old with a brain tumour. She says something important for all children with scary conditions requiring scary treatment, with uncertain outcomes. I needed to understand, so that I could handle everything that was going to happen.